Hannah meets with the Rheumatologist today, and there's a lot of questions still left unanswered. Blood work comes back and states she does not have Lupus, nor Juvenile Rheumatoid Arthritis, but we still can not find reason as to why her C-Reactive Protein Levels which are meant to be between 1 and 3, are at 52! Also why there are other inflammatory markers that are skyrocketing in her labs... We were also warned that the acanthosis nigricans that she has is definitely a precursor for diabetes.  Then we find out that we really have to work on getting her weight down, she's 103 lb over weight, yet lives on a feeding tube, and has never ever really eaten food. She has a mitochondrial disorder and her weight is definitely a huge question mark! It scares the hell out of us, knowing that it's heavy on her heart and she could pass away in her sleep...