Scar9 A Mother's Journey
I want to inspire people, I want to teach and help others simply to understand the "unknown" and not to judge or be afraid...
Ezra means help, and Monet is my daughter's middle name and means to be heard. Our journey is going to cover just what it says, how I got to where I am now, and how I became we, and we became a mystery! Hannah is my daughter, I’m Christina her mom. Hannah is my strength! She's the Wise Titanium warrior!
“she was fierce, she was strong, she wasn’t simple, she was crazy and sometimes she barely slept. she always had something to say and that was ok. and when she was down, she got right back up. she was a beast in her own ways, but one idea described her best. she was unstoppable and she took anything she wanted with a smile." R. M. Drake
Our story was featured in the Washington Post 2/16/16
Our Daughter is Case 1 in the entire world with her own UniQue case of SCAR9 and it's our fighting mission to find more, and promote awareness along the way! Have anything to offer us, or just want to reach out and say hello, or have a question? No question is too silly, trust me I have had my share too... click on the box above and I will be sure to get back in touch with you!
I'm a mother who's on a journey to connect with others with Rare Genetic Disorders. To advocate and promote awareness. Scar9 and Autism is our life! Our daughter is case 1 in the world with her own UniQue case of SCAR9 and it's our mission to find more, and promote awareness!
